Knowledge is useless unless it distributed wide, far and often enough that it permeates the public consciousness. Our aim at ironitout.org is to educate as many as possible and help drag this common but rarely diagnosed deadly disorder into the the light.
Medical Community: this includes doctors, nurses, medical staff, medical administration, boiled donation center staff.
Politicians: Why? because they have powerful reach to large groups of the public in America and they can propose changes to the medical system in regards to instituting national screening programs, changes to Red Cross charters and taking on the cause. One national political speaking up for hemochromatosis can influence millions. I you know any congressman, representatives who have iron overload, or have family, friends with the disorder. please email us ironitout.org/contact
Celebrities: We need one or more celebrities with this disorder or with connections to it to get involved. It would raise awareness in a big way. Email us if you find a public figure, celebrity with HH
General Public: While this disorder affects large numbers, few know they have it or do not get diagnosed until a lot of damage has been done. Even though hemochromatosis effects more people than ALS, MS and MDA combined, it is orphaned and ignored because it’s 3 out of 4 people don’t show symptoms, there’s not national screening program and symptoms mimic middle age ailments and other diseases. We must make iron overload a household name because early diagnosis is the key to full life expectancy, preventing serious illness, avoiding eight types of cancers, heart failure, cirrhosis and diabetes.
ironitout.org action projects all promote greater awareness and involve education
*National HH Awareness Campaign (print, radio, video, social media)
*National Screening Program for HH
*Establish blood donation for transfusion programs through Red Cross, Blood Banks and Hospitals. Stop the countless gallons of good blood being thrown out every day by these organizations every day… while they plead with the public about shortages and donation needs.