Ignorance or Greed?
Either the medical system puts iron tests back on the routine blood panel because they embrace simple, life saving preventative medicine, or own that it’s more profitable to treat chronic illnesses.
Because that’s the story of the past two decades of hemochromatosis.
Real people share why they’ve signed ironitout.org’s petition to put iron tests back on blood panels. It’s sobering, heartbreaking – the complications and illnesses are preventable with early diagnosis. Now it’s your turn to sign, share, save lives and help change the system. Sign here: petition
Paul Schafer SEATTLE, WA – A friend of mine didn’t know he had this in August. Over Labor Day weekend he started showing symptoms. He died Oct. 13th. Early testing would have enabled him to counteract it while he still was able.
Darla Kemmerer CLINTON, MS – Because my 46 year old husband has cirrhoses due to untreated/undetected genetic hemochromatosis!
Kristen Merchant BAY VILLAGE, OH – Because I lost my Dad to this DISEASE 15 years ago. He died way too young and had we known more about this disease he would still be with us today. He would have met his grandchild. It’s not too late to save other lives with necessary testing.
Wendy Bellinger LITTLETON, CO
I was diagnosed at age 63, after years of being accused of malingering, or having fibromyalgia, or just being lazy. A simple blood test, that no doctor had ever ordered before saved my eyesight, my organs and my well-being. No one needs to have a crippled life for want of a simple blood test.
SIGN PETITION HERE:
John Paulson REDONDO BEACH, CA
Because I have HH and lost my twin brother to it. Unfortunately, the only reason I find out was due to his death. No one should have to go through this, esp when it is just a simple test. Let’s Ironitout!
Amy Zatkoff DAVISBURG, MI
My Aunt Norma Rabideau is suffering because this is not something that was checked.
Darlene Kot WOODLAND PARK, CO
Because our regular doctor was clueless and my wellness doctor questioned my husband’s lab results. He has hemochromatosis and it was discovered at a fairly early stage.
Bonnie Sayers WEST FARGO, ND
My husband has Hemochromatosis and it would have never been diagnosed early if we had not ASKED for this to be looked into due to reviewing lab reports ourselves. We had to BEG for genetic testing to be done and struggled through the process because early intervention is foreign to the medical community. Both of my husbands parents died at age 57.
Michelle Groman LOS ANGELES, CA
My family found out we were carriers after my uncle died at 47 of HH.
Denise Tiedemann JACKSON, NJ
I have hereditary hemochromatosis, and never heard of it before being diagnosed. I want to make sure as many people as possible who have it get diagnosed early!
Janet Cummins SANDPOINT, ID
I have 2 copies of C282Y gene which took many years to diagnose. My children have at minimum 1 copy a piece. My Uncle died of pancreatic cancer and he had iron overload.
David Mullen CLINTON, MA
Because I have Hereditary Hemochromatosis that was only caught when I went to make a blood donation. The Red Cross noticed my hemoglobin level was high and suggested I talk to my doctor about it. She then ran a couple of tests including iron panel. That’s what led to my diagnosis!
Debra Lafevers NAPLES, FL
Because my nephew’s father died unexpected 16 years ago, he was diagnosed one year before he died. Now his son is going thru the testing process because he knows, how many of us do not know?? Won’t Get Tested??
Cathy Fortenberry PINSON, AL – I have cirrhosis due to HH.
Danny Drake HOGANSVILLE, GA – My wife and all her siblings have been diagnosed with this condition later in their lives and lived with different symptoms and conditions and were all treated for other diagnosis until my wife was diagnosed and treated and shared with them and asked them to also be tested.
Nancy Gidge ST. LEWIS, NL, CANADA
My spouse has HH.
Mark Thomson AUCKLAND, NEW ZEALAND
Because preventable disease is just that, preventable. What happens in the USA is often reflected in many other nations including my own, New Zealand. Some may argue that”you have to die sometime…” however I think most would agree that to die of a chronic lingering, life sapping diseases is not their preferred option.
Cindy Strickland ANCHORAGE, AK
It’s deadly, silent but so very treatable with phlebotomy and diet.
Joyce Vogler MANASQUAN, NJ
Because my mother died from this, undiagnosed and through the help of my sisters doctor she discovered this gene in our family. Now I know I have it.
Marie Pentland COPPULL, UNITED KINGDOM
I am a carrier and my Daughter is a victim of the overload.
Michele Pearcy SUNNYSIDE, WA
Because this effects my family, and my dad was almost killed by his doctor because they thought he was anemic, thank God they found out it was hemochromatosis instead.
Beth Brewis CULLMAN, AL
I have heritary Hemochromatosis
Lisa Black MORENO VALLEY, CA
My daughter has this.
Jana Skinner SAN CLEMENTE, CA
Because I almost died, and now am handicapped.
Carrie Stsnley MCLOUD, OK
My sister has the condition.
Laura Goodenough HILTON, NY
I was diagnosed with hereditary heterogeneous hemochromatosis too late. Early detection is the key to a full long life.
Antonia Blume SEATTLE, WA
A friend of a friend just died from this disease because of lack of early diagnosis. This is an easy fix– lets do it!
Cheryl Adrian-Chase BILLERICA, MA
To make this be a more regularly tested for condition, My husband has this and we found out by chance while in the meantime he had tough symptoms and no answers until we found out years later by accident.
SIGN PETITION HERE:
Marcy Mnich SAINT PARIS, OH
I fight anemia everyday, on such loads of iron and I never seem to have enough. I’m exhausted all the time. I find this very interesting & feel that these test are so important.
Tina Bryant SUMMERSVILLE, WV
I have hemochromatosis and maybe would have been diagnosed earlier
Joan Gilbert HOLLY, MI
I’m signing because my family is effected by this disease
Carla Florsheim MONROE, LA
I have Hemachromatosis and I want this test as part of my routine blood work!
Denise Prough WANETTE, OK
Someone in my church family has Hemochromatosis.
Carol Far LAKE OZARK, MO
I have HH and know that there are so many others out there that have the same thing and don’t know it. HH is treatable and can save lives if caught before any damage is done.
Julie Sampson IRVING, TX – Because I have Hereditary Hemochromatosis, which could have been diagnosed years ago. Now I have permanent liver and joint damage.
Amy Wyscarver OAK RIDGE, NC
I have the homozygous gene for HFE presented with severe iron overload after CANCER treatment. I am happy to discuss the far reaching implications this has had on my health with a local representative. I am an oncology nurse, cancer survivor and now HFE patient who cares about getting people the correct care they need.
Beth Glover GLENDORA, CA
I’m a CPHON, working with patients with hematologic disorders. Iron overload is a big problem and much more easily treated than even a decade ago. Would be good to screen people early on before permanent damage occurs.
Terry Little CUMMING, GA
Because my husband has it. Because of hemochromatosis, his liver is damaged, his pituitary gland are not working correctly, and his life is changed forever. And it changes our family life, too. Our two boys are now carriers (we tested them when they were young), his brother has it, his parents are carriers. These tests will save lives. Thank you!
Jennie Lever WEST FARGO, ND – My husband was diagnosed after FORCING his dr to do an iron test.
SIGN PETITION HERE:
Pamela Vanderpool METAMORA, MI
This in my family!
Sherry Hitch ONALASKA, WA
I have Hemochromatosis and if it is caught early you can suffer little to no damage, once you’ve loaded the damage cannot be reversed. The older I get the more pain I have in my joints and body. The amount of damage this disease can do is incredible, on simple blood test can make a difference on life or death!
Kristin Christ NAPERVILLE, IL
I have been being treated for hemochromatosis for 15 years. It was found “accidentally” with routine blood tests. If they had not found it and treated me for it then, I would likely have irreversible health problems similar to my Father’s.
Marcia Smith SINKING SPRING, PA
Because it can help with earlier diagnoses of some diseases.
Martin Hecht STEVENSON, WA
A very close friend of mine has been diagnosed, and I believe that we can make a difference to save lives.
Mary Welch ROCHESTER, NH
If they don’t look for it then it won’t be found! The symptoms could be easily mistaken for so much else.
Amanda Newman COLUMBIA, MO
I suffer from this disease.
Catherine Tappouni JACKSONVILLE, FL
I’m signing because this disease is easily detectable with a simple blood panel test and could prevent needless illness and death in those who may have it.
Jo-Anne Lagacé MONCTON, CANADA
I’m signing because I have Hemochromatosis and many families do as well, some don’t know they have it, others think they have it but don’t have the support of their family doctors to have the proper test done.
Donald Longan BERKLEY, MI
I was fortunate to having a Doctor who believed in these simple tests. My quality of life and longevity has been improved!
Ellen Strecker HOLLAND, OH
My friend’s mother died at age 58 from this undignosed disease.
Natasha Hoffmann READING, PA
My father was recently diagnosed with pancreatic cancer, with in that same month I was fortunate to find out that I have the hemochromatosis gene that most likely played a part in my fathers cancer! I have many symptoms and have been chasing my health for the past 4 years, on top of being a new mom. going from dr to dr, lots of cbc s and not one of those tested for iron!!! This could have been figured out along time ago if a simple iron test would be part of a CbC from the start! Please help us so we all can be aware and live a healthier life!
SIGN PETITION HERE:
Marilyn Bettencourt ORTONVILLE, MI
For my friend Shelly who is diagnosed with this disease.
Kevin Brannigan EAST NORTHPORT, NY
Test from 9/11 study found that I have Hemochromatoisis… without a doubt saved my life.
Janet Green MANSFIELD, TX
My family is affected by hemochromatosis
Lea Mawhinney LARNE, UNITED KINGDOM
My sister has it
Enid Fox SUNNYVALE, CA My mother died in 1977 due to undiagnosed genetic hemochromatosis. Had she been screened, she would have lived until her natural death. She died at age 58, long before her time.
Dayna Hall CLEARWATER, FL
It would have saved me a lot of pain and suffering. We knew no one in my family with hemochromatosis.
Olivia Boatner SAINT JOHNS, FL
My mom has this disease!
Kelly Hankey RALEIGH, NC
I’m signing because my friend’s life was saved by a simple iron test.
Amy Milroy HIGHLAND HEIGHTS, OH
I, along with most of my family, have hemochromatosis and I am horrified to think of all of the people out there who don’t know they have this deadly disease!
Virginia Mansolillo NEW PORT RICHEY, FL
If it could help with early diagnosis and even save lives, then these tests should be administered.
Shannon Grasso MARTINEZ, CA
I have hemochomatosis and would have found out decades earlier if I had been given a routine iron panel. I am lucky I found out at all (through my own perserverence and out of pocket expense).
Daniel Hillenbrand CHANDLER, AZ
I have HH that has resulted in organ damage, joint damage and overall decreased health and quality of life. Much of which could have been avoided had “Iron Tests” been routine part of basic labs…..
SIGN PETITION HERE:
lisa lind COMMERCE CHARTER TOWNSHIP, MI
My husband has hemochromatosis
Michelle Sode PRINTER, KY
My best friend had hemochromatosis!
Arianne Cakarnis LAKE OSWEGO, OR
I have HH and it was caught on a full iron panel by a naturopath. Now I have a hematologist I see for treatment. Never before noticed by any primary care doctors..
Sean Woodyard CHICAGO, IL
I have hemochromatosis
Denise Vaillancourt MANCHESTER, NH
My husband found he had Hemochromatosis when he had pain in his foot and bones his was pushing 2200 iron levels. Also when he told his brother to get checked it was too late his was 1800 and had already dying from the iron storage overload.
Roxie Harwell ROBSTOWN, TX
I have hemachromatosis and am tired of the high cost of testing for iron along with the normal test.
Sheri Shoberg EAGLE RIVER, WI
I would have died from Hemochromatosis had my doctor not done these tests. This disease is common and everyone deserves to be tested.
Marianna de Ciutiis REDONDO BEACH, CA
My Uncle’s life could have been saved if the ferritin count was still on the CBC!
Jessica Quiroz SAN BRUNO, CA
I have a family member that was diagnosed with hemochromatosis
Gina Clinton FUQUAY-VARINA, NC
I’m signing because I carry a diagnosis of hereditary hemochromatosis. I lost two of my grandparents at an early age of undiagnosed HH. Many in my family are carriers and will never know if the proper testing does not take place. I am one of the many faces of this Silent killer!!
Gale Wilcox TIOGA, PA
I have hemochromotosis. It will kill me eventually. It did kill three brothers who were never tested. My father was 36 and died from a massive heart attack and had his first at 17. My one daughter ws tested as a carrier but still has a bad heart and had surgery and many of the miladys wrong with her and the rest of my family come from hemochromotosis. The genetic test should be done also at birth so everyone knows when to start getting tested for too much iron loading and start getting bled. Please pass this bill. Please! One of you may have it and not know it. Now wouldn’t that be something?
Deana Anderson ROY, UT
I have lost family members that could have been treated earlier and survived had they been tested for hemochromatosis.
Rana Avery ARCATA, CA
Early screening would have saved my life and my health. 51 years with an undiagnosed genetic disorder that could have easily been treated, has destroyed my liver and shortened my life. This should not be happening to anyone in the USA.
Patricia Heckman REDONDO BEACH, CA
I’m signing because I believe it will wake up the world to the actual prevalence of Hemochromatosis.
Beth Biagini PORTLAND, OR
My husband almost didn’t get diagnosed with this hemochromotosis because this test is not on the routine blood panel.
Julie Bialkowski OLD FORGE, PA
My family has high iron and our future generations need this.
Bethany Dietz METAMORA, MI
My family is being affected by this; this highly treatable, but deadly disease isn’t properly being diagnosed because it isn’t regularly checked for and tests are not being covered by insurance. We need to make this a regular part of our health care regime!
Brent Nuttall PHOENIX, AZ
I was diagnosed in 1997 because it was on the panel now I have to get it special ordered every time I need to check my levels. This affects my family and almost any American.
Beverly Porter LINCOLN, NE
It’s important and I suffer from hereditary hemochromatosis. I feel very fortunate that I accidentally found out my ferritin was high before it damaged my major organs.
Jane K. Collins NEW HAVEN, CT I have HH. I want my family members and others to escape the secondary effects of this disease! IT’S SOOOO EASY, AND INEXPENSIVE!!! Just standard bloodwork can make all the difference, please help.
SIGN PETITION HERE:
Colleen Streetman WESTERVILLE, OH
I have a friend whose mother has this disease, please sign the petition to have this simple blood test added to CBC tests.
Kendra Gillilan PAONIA, CO
We have to pay more just to get iron blood tests and they need to be included!
Tracy Davis CHESAPEAKE, VA
I’m signing because I have Hemochromatosis and because of stumbling upon my diagnosis I was able to urge my sister to get tested. She also has two copies of C282Y which prompted her to have my niece tested. She in turn discovered she has the same two copies. I feel lucky that we know early and can PREVENT organ damage in the future! Prevention is key & you can only do that when you know you are loading iron. A simple complete iron panle would do that.
Brenda Jackson LESLIE, MI – This mutation is running rampant on both sides of my family. We didn’t even know it existed until it was listed on my uncles death certificate as cause of death.
Betty Klingler LAPEER, M
My aunt has this disease and is suffering because of it! I want my husband and children tested, however the test cost to much!
Trisha Case LAPEER, MI
I can’t believe they don’t routinely test for iron deficiency and overload.
Michele LeBourgeois METAIRIE, LA
I’m signing this petition because I have Hereditary Hemochromatosis and luckily I have a phenomenal physician that looked at my symptoms and researched with testing my iron, iron saturation, serum ferritin and genetic DNA testing. Thank God he did because my body was in iron overload! This is a deadly genetic disorder that, thankfully, I was able to get my brothers and cousins tested to make sure they were checked for this deadly disorder!
Maureen Schwam COMMACK, NY
I have the disease.
R. ALEXANDER CASTLE ROCK, WA
I have a friend that has this. She has already lost one family member. She comes from a very large family with siblings, nieces, and nephews across the United States. It is extremely important that this test be added into the normal CBC testing.
Joan Teti HARRISBURG, PA
I am a carrier of this disease
Diane Terry TIFFIN, OH
I am signing because my covered by insurance CBC panel test quadrupled and insurance will not cover it because it had tests that were separated but taken in addition to the CBC. After I sign this, I’m going to look at my test results again.
Thomas Mackert DERBY, NY
I almost died because my Hemochromatosis was so far along by the time I realized something wasn’t right. The late diagnosis also left me with permanent health issues other than the Hemochromatosis that affect my life every day. It would have been caught sooner if this was a part of a standard CNBC blood screen. You are all looking for ways to save money. This will save money in the long run, not to mention save millions from needless suffering.
Rosemary Hampson PETERBOROUGH, CANADA
I have hemochromatosis and I found out I had it by pure luck. I would have died if it wasn’t discovered!
Kelly Greenwald LAPEER, MI
In honor of my family!
Cindy Britton BROADWAY, VA
I have hemochromatosis
Alissa Kennedy WEST PALM BEACH, FL
Because I have this disorder and I want more to find out sooner then later when it’s to late
Lisa Permar TIFFIN, OH
I have hereditary hemochromatosis. First thing I did, was inform family to be tested , not one of them have “because their Dr. would have known.” I have told them no, because it is not part of the ordinary blood panel. This disorder kills and relatively simple to treat, but only if caught in time!
Megan Rabideau LAPEER, MI
I’m signing because my mother-in-law is suffering from this disease caught too late and the cost of testing for my husband and children is out of our realm of possibility without saving for several months. We need testing as soon as possible to prevent any further damage if they have it.
Sign and share the petition!