Hemochromatosis Awareness & Education Bicycle Ride 2018

Carry The Weight: Coast to Coast He11692754_10206075691186325_7464400074528600817_nmochromatosis Awareness, Education Bicycle Ride.

Fundraising Goal: $125,000




Programs It Will Fund

1. HH National Awareness Campaign . (videos, ads, media saturation.)

2. Advocating  For A National Standard Screening Program. Petition drive: https://www.change.org/p/demand-gov-put-iron-tests-back-on-routine-blood-panel-www-cms-gov-www-cdc-gov-patty-murray-lamar-alexander-bernie-sanders-al-franken-richard-burr-rand-paul-demand-gov-put-iron-tests-on-routine-blood-panel-prevent-deadly-and-chronic-illnesses

3. Campaign to increase # of locations where HH Blood accepted for transfusion.

A virtual/online bike race by people to a set fundraising finish line.  While, in the physical world Joe will bike across America to bring  attention to Hemochromatosis With people joining him  along the way.

[paypal_donation_button align=”center”]

Wearing the number 52 which represents how much donatable, lifesaving HH blood per person gets thrown away annually. Millions of pounds of good blood is treated as biohazard material (costly disposal) instead of going inside veins and saving lives.


Donors can pick rider(s) to support on the virtual ride and people are encouraged to join Joe during any part of the ride cross country.

The ride itself will bring local, regional and national media attention to increased awareness of Hereditary Hemochromatosis.

Dying To Be Detected

19fsvzThe world’s most common deadly treatable genetic disorder, hereditary hemochromatosis, is also the least detected, diagnosed and treated in time to prevent chronic illnesses and premature dead.

Not through lack of knowledge, but willful negligence on the part of a profit driven medical system.

Why in 2016 are people getting ill and dying without even knowing what hurt or killed them?

Why do death certificates list cancer, heart attack, cirrhosis when HH was what triggered their demise?

Why, when a simple, inexpensive iron panel could be added back on routine blood work does it remain a hit or miss, doctor’s best judgement call? sign petition here

Why, when the American Medical Association’s own study about iron panel test screening projects a 20 fold increase in detection, leading to 600,000 people annually, being monitored and treated in time to prevent 121 downstream chronic and deadly illnesses in the USA alone – at a cost savings of 500 billion dollars over the next two decades – do tests remain off routine blood work?

In a word; money.


1.There’s no profits in a proven, drug free treatment – therapeutic phlebotomy.

2. There’s a huge profit loss in preventing up to 20 percent of 121 chronic and deadly illnesses, all of which have drug treatments and medical procedures generating billions of dollars in revenues for publicly traded companies in a for profit medical system.


3. There’s no loud, insistent entity on the side of HH detection and treatment… until now. www.ironitout.org  sign petition here: sign petition here








Everyone who becomes aware of these facts understands it’s not a medical mystery, but a lack of political will to do the right thing in the face of huge profits, blood money made on the backs of sick and dying people, who have names and dreams and families …. and futures if we rise up together, right this wrong and drag this disorder out of the shadows.


Help us stop criminals in suits marking your family and friends for suffering and death just so they can maximize their stock prices.

Sign and share our petition to put iron panel tests back on routine blood work. sign petition here

Watch and share this PSA about HH and the petition project:

And here’s  list of 121 illnesses and conditions related to HFE gene mutations so you can see what we are trying to prevent:

Acanthosis Nigricans
Acute Leukemia
Acute Lymphoblastic Leukemia
Acute Myeloid Leukemia
Acute Myocardial Infarction
Adrenocortical Insufficiency
Alzheimer’s Disease
Alzheimer Disease Type 2
Amyotrophic Lateral Sclerosis
Aplastic Anemia
Artery Disease
Ataxia Neuropathy Spectrum
Atherosclerosis Breast and Colorectal Cancer
Beta Thalassemia
Breast Cancer
Cervical Cancer
Childhood Leukemia
Chronic Myeloproliferative Disease
Chronic Venous Leg Ulcers
Cluster Headache
Colon Cancer
Common Variable Immunodeficiency
Colorectal Cancer
Cystic Fibrosis
Deficiency Anemia
Diabetes Mellitus
Diabetic Nephropathy
Dilated Cardiomyopathy
Fatty Liver Disease
Friedreich Ataxia
Gastric Cancer
Hemochromatosis Type 1
Hemochromatosis, Type 2
Hemophilic Arthropathy
Hepatitis B
Hepatitis B Virus Infection
Hepatitis C
Hepatitis C Virus
Hepatocellular Carcinoma
Hereditary Hemochromatosis – juvenile
Hereditary Spherocytosis
HFE Associated Hereditary Hemochromatosis
HFE Hemochromatosis
HFE Hemochromatosis, Modifier of
Hyperferritinemia Cataract Syndrome
Insulin Resistance
Iron Deficiency Anemia
Iron Metabolism Disease
Kaposi’s Sarcoma
Kidney Disease
Lateral Sclerosis
Lead Poisoning
Liver Cirrhosis
Liver Disease
Lymphoblastic Leukemia
Male Infertility
Microcytic Anemia
Microvascular Complications of Diabetes 7
Multiple Sclerosis
Myeloid Leukemia
Myelodysplastic Syndromes
Myocardial Infarction
Nonalcoholic Steatohepatitis
Ovarian Cancer
Parkinson’s Disease
Pearson Syndrome
Peripheral Artery Disease
Peripheral Neuropathy
Porphyria Cutanea Tarda
Porphyria Polycystic Ovary Syndrome
Pyruvate Kinase Deficiency
Rheumatic Disease
Rheumatoid Arthritis
Schizoaffective Disorder
Sickle Cell Disease
Syndromic Diarrhea
Type 2 Diabetes Mellitus
Variegate Porphyria
Venous Thromboembolism
Viral Hepatitis
Wilson Disease
X-Linked Sideroblastic Anemia



Athletes And Iron Overload – A Population At Higher Risk?

Hemochromatosis is the most common deadly genetic disorder in the world.


1 in 9 are affected. Having the mutations increases one’s risk of storing excess iron in tissues and organs. Iron overload is the  trigger for a dozen cancers, chronic and deadly illnesses including heart attacks, liver disease, liver and heart failure, arthritis, diabetes. It has one of the lowest diagnosis rates in the world with less than 8 percent discovering they have it in time to treat properly, or at all.

But are athletes at greater risk of iron overload than the general population?


A number of studies have concluded YES, they are.

But Why?

1. Iron Supplements

Although numerous science based studies have determined it generally does not improve performance, iron is often used by elite athletes. This trend has been on the rise for decades, promoted by the vitamin industry.  Publicity about it’s use has influenced mid-range athletes and the larger population of citizen athletes training for charity runs, spartan races, marathons, teams of all sports and cycling clubs.

The physiologic changes induced by exercise can mimic iron deficiency and decrease hemoglobin and ferritin concentrations over the short term. Determination of serum transferrin concentrations identify true iron deficiency, but too many athletes simply take iron pills or multivitamins with large doses of iron without being tested for real deficiency, overload or genetic mutations… because they heard it was good for them and might give them an edge.


Since HH has one of the lowest diagnosis rates in the world, with less that 8 percent discovering they have it in time to treat, or at all, a large segment of athletes are playing russian roulette every time they take iron pills.

In contrast, increased iron stores in the body are a frequent finding in elite athletes who have used long-term iron supplementation. For example,  elite runners have increased intestinal blood loss, but can be compensated by enhanced absorption of dietary iron i.e eating a healthy diet of food. Taking iron pills and supplements only increases the risk of iron overload (especially in athletes with undiagnosed hereditary hemochromatosis) without improving performance.

2. More than a casual relationship between elite athletes and a higher prevalence of hereditary hemochromatosis than general population has been established. 7978390

No less than four independent scientific studies in Britain, France, Spain and Australia have reached similar conclusions – athletes test for HH at higher rates than general population, not due to supplements, but at the genetic level.  The Madrid study findings indicate a high prevalence of HFE gene mutations in highly trained professional athletes populations (49.2%) compared with sedentary controls (33.5%). In a study of French athletes across several sports the primary conclusions were that while 27% of the French population is heterozygous (carriers) for mutations in this gene, 80% of the French athletes who won international competitions in rowing, Nordic skiing, running and judo displayed mutations in one or more allele of HFE, thus demonstrating the existence of a favorable phenotype linked to this heterozygosity. Additional conclusions from these studies included:

A. The frequency of HFE mutations in elite athletes is up to twice as high as in controls. (across all the studies)

B. In the international podium group from the Fench study, 80% of athletes had mutations in the HFE gene.

C. The HFE mutations are favorable to high level performance in athletes.

D. Heterozygous HFE mutations could be associated with a favorable phenotype.

3. Athletes get tested more frequently and thoroughly for their physical condition than do the general population.  del_65461_medium1

A strong argument, backed by data from three medical system surveys, indicates one reason more athletes know they have HH than do in the general population – and get treatment – is because they schedule more physicals, or are mandated to take them by sponsoring organizations, request more tests be run and are viewed by health professionals as stronger candidates for specific panels and tests outside of routine blood work. Because they present less factors such as drinking, smoking, poor diet, lack of activity, doctors look beyond presenting symptoms for a source.

The Take Away:

  1. While more studies need to be done regarding the correlation between elite performance and prevalence of gene mutations, athletes of all stripes should NOT take iron supplements and vitamins with iron in them.
  2. Highlights the need for widespread, routine iron panel testing for all populations to catch this disorder and it’s damaging effects early and often. Sign our petition to make those tests routine again  sign petition here

Two videos of world class athletes who discovered they have HH and were in iron overload:

Big Pharm EpiPen Gouging Nothing Compared To Decades Of Profits Made Burying Hemochromatosis: Sign Petition

Big Pharma Epi-pen Price Gouging Chump Change Compared To Profits Made Burying Hemochromatosis

Stem one disorder or make big profit treating all the illnesses downstream?


For decades  a profit driven medical system has sidelined the most common deadly treatable genetic disorder in the world, minimized its impacts, risks and hid the devastating consequences of hereditary hemochromatosis on death certificates… for one reason. There’s no money in treating HH.

Worse, since it’s the source code for so many other downstream illnesses, early detection and treatment would eliminate up to one fifth of the market treating resulting illnesses – ranging from cancers to liver failures, diabetes, arthritis, cirrhosis, Alzheimers, heart attacks and failures.

Too much money is at stake. Flawed and easily disputed research funded by the the pharm. industry was accepted by the medical community – setting policy for decades and proliferating myths and missing diagnosis after diagnosis to this day,

To change this sign our petition demanding iron tests go back on routine panels now:

Click To Sign

Profits Over People


Fueled by Greed, Flawed Research, Outdated Information and Misdiagnosis, Profit Driven Medicine Left Millions With Hemochromatosis to Suffer and Die – Pocketing Billions Treating Dozens of Resulting Illnesses.

Medically speaking, Hereditary Hemochromatosis is no mystery, it’s a very simple disorder to understand, diagnose and treat.

A genetic mutation causes excess iron to store in organs and tissues.

When stored iron reaches toxic levels it causes disease, cancer, organ failures, chronic illnesses, death.

HH triggers up to 20 percent of dozens of cancers and chronic illnesses.

Stored iron is removed safely/inexpensively through phlebotomies (blood donation). A drug free treatment.

Early diagnosis, monitoring and treatment offers full life expectancy.

Simple, inexpensive iron panel tests, and a genetic test have been available for decades – yet not routine.


“ … most physicians have never personally diagnosed a case, but all will see an unrecognized case in their offices every two weeks.” -Vincent J. Felitti, MD, FACP Lead Scripps Researcher



Follow The Money

In 2016, a small fraction of hemochromatosis cases will be  diagnosed. With 15 million carriers, 3 million with double mutations approx. 75-80 percent remain unaware.

But who could blame the public or doctors when medical websites and doctor portals such as up-to-date have these numbers flipped? Assuring the public with completely backwards numbers and improperly educating doctors that 75 percent of HH cases are diagnosed by the time one reaches adulthood. (false) When confronted with these inaccuracies the administrators claim to be swamped and would look into updating and revising their information – the irony can not be lost, given the name of the doctor portal in question is up-to-date.

Until 1996, ferritin testing was on the standard executive blood panel run when getting a physical or in the emergency room. A cheap, wonderful diagnostic tool. Follow up and a simple genetic test offers 100% certainty of hemochromatosis mutations and monitoring keeps iron overload from taking hold.

The American Medical Association’s (AMA) own study concluded a 20 fold increase in detection of HH/iron overload if ferritin tests were again standard and routine.

Wrap yourself around those numbers. If 20,000 people are diagnosed annually, we’d see a bump to 400,000 new cases in the USA alone.

It’s painful to think how many lives could have been saved since 1996 if those tests had remained standard and routine. Who is to blame – Big Pharma teamed with the insurance industry to unbundle those tests – they are to blame! We should be advancing, not going backward in medical diagnosis, early treatment and preventative care. instead we went in reverse.


Development of a chelator drug treatment was attempted in the 1990s. Too many dangerous side effects caused it to be abandoned for commercial production. Why would a drug company pursue a commercial treatment for a disorder that according to their own funded studies causes a less than a 1 percent illness rate?

Also, Why take an active role in unbundling the diagnostic blood tests for HH from routine panels only AFTER commercial drug creation failed?

Fast forward to 2015. During an interview with a drug company entering clinical trials for a new ferritin reducing drug, the first attempt in decades, we asked; Why spend time and money developing a drug for a disorder that makes so few people ill?  Met with laughter. The medical officer of the company explained that early studies the entire medical system based its policies on were flawed. Worldwide studies done later put the rate of illness, conservatively, at 25-30 percent.


The Pharm. Industry is a multibillion dollar growth industry with 6 in 10 taking some form of daily medicine. There’s nothing anti-science or anti-medicine about questioning why more emphasis and funding isn’t placed on prevention, healthy lifestyles and seeking root causes/triggers of chronic and deadly illnesses.


To be clear, there is a vital role in medicine for developing lifesaving vaccines and drug therapies, but turning a blind eye to the overwhelming medical information that focusing on hemochromatosis will prevent significant percentage of resulting illnesses is criminal. It moves this beyond a medical question, to an ethical and moral one.

How you can help:

Sign petition to make testing standard and routine again worldwide: petition
Share This PSA:PSA
Donate to specific actions projects at www.ironitout.org/support
Share this article.






Only A Revolution Stops Hemochromatosis Body Count! Will You Help?

Time to get off the sidelines.   Time to put resources into this battle!


We don’t need millions spent on HH research. We already know the how, what and whys of this disorder.

We don’t need millions spent on finding a wonder drug. We have a safe, effective drug free treatment right now.

We don’t need thoughts and wishes. Only loud, sustained voices and specific actions will bring about awareness and positive change.

We don’t need bad research continuing to set current policies. HH is NOT rare. It’s the most common deadly genetic disease in the world, 1 in 3 with HH will get sick.


We need a movement that understands the forces we are up against and sounds the alarm and pushes solutions.

It’s time to get loud and mad and raise all manner of educated hell until everyone knows what HH (iron overload) is,  why  it’s so dangerous, but easy to diagnose, treat if caught in time and why it matters to everyone.


Why you should care:

HH awareness  = Cancer Prevention

HH = Heart Attack Prevention

HH= Alzheimer Prevention

HH = Cirrhosis Prevention

HH= Diabetes Prevention

HH= Arthritis Prevention

20 percent of two dozen cancers, chronic and deadly illness could be prevented at their source which is HH!

Silence = Death,

Asking Politely = Death,

Waiting And Hoping = Death


HH needs a champion, desperately – a group who will call it like it is:

March into battle.

Raise Awareness

Exact Specific Changes

Offer facts, best medical practices.

Fight those profiting by marginalizing this disorder.

Not take NO for an answer!

www.ironitout.org is that group.

A not for profit action network based in the USA but working for worldwide awareness of HH and raising funds to spend directly on 3 action projects:

  1. Screening/testing for HH through simple blood and iron panels. Demand this become routine/standard worldwide using this petition  and reaching out to media, medical groups, insurance companies AMA, CDC etc. to demand change now!
  2. Publicize disorder/increase overall awareness using series of PSA’s on radio, Network TV, Cable and Social Media. Create an Ice Bucket Type Challenge Campaign size momentum.
  3. Educate Medical Community worldwide to scope, penetration of disorder and best medical practices including the end to throwing away denotable HH blood.

* Sign here:  petition

Here’s our PSA for network, cable, radio, social media.  When we raise $100,000, media entity partners will donate an additional $400,000 worth of ad time. Help us fund PSA distribution. Donate here: www.ironitout.org/support

Thank You for taking a stand with us!